Though Stripped Bare by Life, She Clothes Herself with Strength and Dignity

People are like stained-glass windows. They sparkle and shine when the sun is out, but when the darkness sets in, their true beauty is revealed only if there is a light from within.”

Elizabeth Kubler-Ross

Although three years have passed since this was written, her beauty shines brighter than ever and these words ring true. Happy Birthday, Mom!

Eyes Wide Open

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Mom with her firstborn son Todd, circa 1960

Sometime during my years of teenage angst,when daydreams of my future husband seemed to fill endlesshours of my existence, I recall asking my dad to tell me about the first time he sawmy mom. Immediately, an affectionate grin crossedhis face, a sparkle entered his eye and without hesitation, he reminisced.As if he were watching a replay on the big screen, with keen clarity he willingly described the moment.

“She was walking down the sidewalk in downtownLibertyville, her head held high, with confidence and poise, holding thehand of her young son in hers.” Thegrin expanded into a smileas he continued, “…and shehad thosebeautiful, long legs too.”

Never have I forgotten this encounter with my dad. While he did not hesitate to mention her physical beauty, it was not the first thing he noticed about her. Instead, it was herstrength and dignity.For…

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The Antonym of Me: Responding to Hate with Love

Photo by Thuong Do on Unsplash

The burden of helplessness is so very heavy. I feel it in my bones as I drag them around all week trying to accomplish even the basic tasks required by life. Everything demands extra effort and I am tired. Collapsing on the sofa after work, I find myself asleep hours before my normal bed time. Yet in the morning I awake feeling the same as the day before. Rest doesn’t seem to ease the load.

They are so far away from me, the ones who suffer; about 1500 miles according to the map. But at the same time they are so near. I hold them deep within my heart, which breaks and grieves for what has been done to them out of hatred, out of misunderstanding, out of fear, out of ignorance, out of dehumanization.

Jolts of anger rise up and crash through the sadness, shake me out of my stupor and focus my attention on all that is awful and wrong in this country. “Somebody needs to be blamed for the state of our nation in which this tragedy keeps repeating itself over and over!” my brain shouts loudly, pointing proverbial fingers at the characters I most love to abhor in my country.

Though my self-righteous fuming makes me feel better about myself for a moment, it is just temporary and it too fails to ease the load. The helplessness returns with a vengeance, threatening to paralyze my ability to function in any sort of productive way.

Feebly I attempt to avoid the news coverage as it only seems to exacerbate the exhaustion in my soul, yet I am drawn to it like a moth to a flame. It fuels more sadness and grief and anger. It chews me up and spits me back out, beaten and bruised. But I don’t stop myself.

Longing for healing and nourishment and peace I drag myself out to the car and drive to Saturday night Mass. Surrounded by hundreds, I feel utterly alone. The music, the spoken words, they fade to the background as I stare at the crucifix hanging in the front. My gaze falls upon the crucified One.

Little by little I recollect that just as my brothers and sisters who were murdered this past week in El Paso, He too was murdered out of misunderstanding, out of fear, out of ignorance, out of dehumanization. The same hatred that killed them is the same hatred that killed Jesus.

And as He hung there dying, all the while being taunted and mocked, He uttered these profound, game-changing words, “Father, forgive them, for they know not what they do.” While being nailed to the cross by the most perverted and wicked measures of hatred, He responds with the purest expression of love.

The anger and hatred I try to disguise as a thirst for justice—what if it is no better than the hatred which has been used to perpetrate evil? And it occurs to me that those same words, perhaps He utters them about me also…“Father, forgive her, for she knows not what she does.” Truly I don’t know how many times I’ve allowed my misunderstanding, my ignorance, my fear to reap pain and suffering on others. And I really don’t want to know because if I own that truth, I am reminded that there is no them, there is only us.

At the core of us I recognize a collective woundedness, a collective brokenness, our collective tendency to depravity. I am not immune to it. It lies deep within me also, just as it does in a young man who went to a Walmart near the border so that he could kill those whom he most feared in his own thirst for justice. There is no them, there is only us.

As the priest raises the wide rimmed chalice of wine up to the heavens during the prayer of consecration, I imagine us all in the cup together; the murdered, those they left behind, the murderer, his parents, those freshly paralyzed with fear because of the color of their skin, the white supremacists, the first responders, the racists, the surgeons, the politicians, the lovers, the haters, everyone in between and me. I offer us all to God’s mercy and to His power to open our hearts and minds and to His ability to transform our darkness into light, our hatred into love.

The words Father sings with the cup raised high crash into my stream of consciousness. “Through Him, with Him, in Him, in the unity of the Holy Spirit, all glory and honor is yours, almighty Father, for ever and ever.”

With clarity, I see my self-perceived helplessness as a bold lie. Each and every day I have a helpful choice to make—will I allow my woundedness and brokenness to incur more bleeding and pain in this world, or will I beg of the One greater than I that through Him, with Him and in Him, it may be transformed into an expression of redemptive love, as He chose, even while bleeding and dying on the cross?

My longing for healing and nourishment and peace propels me forward in the line to receive communion and I consume the gift of the bread and wine, which my faith tells me has been transformed into His body and blood. It dawns on me that all whom I blame for that which is horrible, they too are children of God. All those I most love to abhor for the way in which they treat those with brown or black skin—they are loved the same by Him as I am. The murderer? Also loved by God. This week I’ve been dragging around the heavy burden of hatred and unforgiveness, all the while trying to justify it in the name of righteousness. But in God’s Kingdom, I don’t think there is room for these. It’s best they be left outside the door before entering. The Christ—truly, He is the antonym of me.

Moved to a place of surrender, I drop my sack overflowing with hate and self-righteousness and judgment and humbly utter the words, Father, forgive US ALL for we know not what we do.

Light Waiting to be Found in the Shade of the Forest

After a week of some seriously formidable heat which forced all attempts at exercise to be done inside the confines of an air conditioned sweat box called “the gym”, this morning’s 70 degree temps, coupled with low humidity was a much welcomed invitation to return to nature. These past days have also been filled with seriously formidable political angst, fueled by hurtful words and chants against those who are different than others. I found a great need within to escape it all and reconnect with that which is life-giving. I hopped on my bike and headed down to the path along the river for a ride.

I left the headphones at home so as to take in not only the sights, but the sounds as well. The birds seemed extra sing-songy. I imagined maybe they too were thrilled with the break in the heat and their song was one of unencumbered joy. I headed south for about 5 miles taking in the colors and shapes and scents and sounds. Then I crossed the bridge and turned back to the north when the most exhilarating breeze greeted me. It was one of those blissful moments when it feels as if nature and I are in tandem. Me, delighting in its beauty and Nature, showing its appreciation with the first burst of cool refreshment I can remember feeling in quite some time.

This got me thinking about God and all the ways in which He is seeking to get our attention to let us know how much we are loved. Lavish colors, sweet fragrances, the distinct noises of rushing water and blowing winds — it occurs to me that on one level, all of it has been created as an expression of love to woo me, to delight me, to communicate to me. This awareness of light arrives in the midst of the shade of the forest and I am filled with wonder and awe. Welling up in my heart is immense gratitude for the immeasurable gift of this love, of this extravagant expression found in the wild.

We are always in the presence of God. What’s absent is awareness.”

Fr. Richard Rohr, O.F.M.

Forest bathing. Currently its all the rage in Japan. The city dwellers escape to the forests on the weekends in order to experience this therapeutic practice in the midst of their crazy busy lives. As it is defined at http://www.shinrin-yoku.org/, “Shinrin-yoku Forest Therapy, the medicine of simply being in the forest. Shinrin-yoku is a term that means “taking in the forest atmosphere” or “forest bathing.” It was developed in Japan during the 1980s and has become a cornerstone of preventive health care and healing in Japanese medicine.”

This term, it comes to mind when I reflect on the oneness I feel with the Creator at this moment surrounded by creation. It strikes me both how depressing and how comical it is that in our contemporary times, when many have schedules which permit the luxury of being in nature on a daily basis, it is “discovered” by scientists that there are real physical and mental benefits of being in nature. Our Creator knew this all along, creating what we need for when we need it; always waiting to welcome us with a bounty of alluring and healing experiences in the diversity of landscapes in which we find ourselves living.

Towards the end of my ride, before ascending the hill which leads to my neighborhood, I sat for a few last moments to bask in the experience. Within eyesight I noticed a plethora of shapes, colors, sizes and species of plants and animals. This creative gathering of diversity blends together to create something far more glorious than any of its individual parts. Within earshot I appreciated the symphony of sounds that accompanied my view. I listened to the cacophony of songs from insects and mammals; the rustling of the leaves in the breeze, the splashing of the water when a fish jumped. Though nature is all so wild and unpredictable, I was most certain in the moment it is also particularly designed and well-planned by the Creator. He makes no mistakes.

In the last leg of my journey out of the forest I am convinced this too must be the same with the creation of the human race in its plethora of shapes, colors, sizes and cultures. We are created in the image and likeness of God. To reject one color or one culture or one individual part of the whole is to reject Him. To refuse one color, or one culture or one individual part of the whole is to refuse the gift of generous creativity given freely as an expression of love to delight us, to woo us, to communicate to us. To throw away one color, or one culture or one individual part of the whole is to throw away a bounty of alluring and healing experiences meant to benefit us. Though humanity is all so wild and unpredictable, I am most certain in this moment each and every one of us has been made with complete and loving intentionality. And it is precisely in this creative gathering of diversity the reflection of the fullness and glory of God is most perfect.

The Joy Found in Dying

Okay, I admit the title I chose for this post may be a bit too dramatic. In the interest of full disclosure, (although I am currently overdue for my bi-annual mammogram) to the best of my knowledge I am not at this exact moment physically dying and truly I cannot speak as to whether or not I will find joy when that process in my life is ongoing or imminent. The dying in which I find joy today is the death of perfectionism, the death of my best laid plans, the death of my high standards for others, the death of my fierce and stubborn ego. This process is ongoing, obviously, because on many days, I am still a perfectionist, think my plans are the best, have impossibly high standards that no one can meet and let my fierce and stubborn ego try to lead the way. But every so often come moments or hours or even days when I encounter a surrender within myself to the One who created all things. In those times a sense of deep joy rises up within me and a sense of refreshing relief washes over me like a rushing stream of fresh cool water on a hot and oppressive summer day.

One of the best gifts I ever gave my daughter is one that keeps on giving to her every day (bonus-it gives to both me and my husband too). Last October on her 18th birthday we signed up for the monthly subscription to Spotify and made it a family subscription, so our little trinity could enjoy our vastly different tastes in music and experience sweet family harmony. Randomly I will remember an artist or album I loved in my youth or young married days, (before the lost years when kid tunes suddenly dominated like 10 years worth of music time while driving in my car) and when I search for it, without fail I get my instant fix. The other day I was riding my bike along the river and just such a random artist popped into my head, Lauryn Hill. Remember her from Sister Act 2? Remember her singing Joyful, Joyful or the 30 second scene of her way-too-short rendition of His Eye is on the SparrowAnyway, I had a hankering to listen to her voice. I cued up the playlist Lauryn Hill-Miseducation and heard a song that days later, still will not leave me.

It amazes me how God makes His presence known to me most often in ordinary ways and through ordinary means-so ordinary that I probably miss Him a lot. But I decided to hop off the bike, sit on the edge of the river by the dam and listen to the words of a song I had never heard before. To Zion which is on her album The Miseducation of Lauryn Hill is a gospel inspired mom anthem (written about her firstborn son, Zion) featuring Carlos Santana on the guitar. It is powerful, filled with the naked and raw emotion of a mother’s experience of welcoming new life into her world.

Now the joy of my world is in Zion…

I’ve never been in love like this before…

And I thank you for choosing me

To come through unto life to be

A beautiful reflection of his grace

For I know that a gift so great

Is only one God could create

And I’m reminded every time I see your face

That the joy of my world is in Zion

Lauryn Hill

This song and its words have been haunting me for days because God knew I needed to be reminded of the gift so great that is mine in my daughter Sadie. She is my firstborn, my only and the greatest catalyst for God to put to death in me the things that keep me from being who He made me to be.

Almost from her beginning it was clear that she was not going to fit into any of the boxes prescribed by the orderly, polite society to which I aspired to be a most perfect citizen. And eighteen years later, unabashedly she continues to refuse to be boxed. While I still wrestle with the chains of being pleasing and apologetic to all in my world—friend, foe or stranger—she lives unapologetically, fearlessly living her truth, free from the need to please others at all costs to the self.

Her high school graduation was at the end of May, but she didn’t walk with her class. Despite weeks of me begging, bribing and cajoling for her to just pass the class she needed so we could be done with this school thing, true to form, she did things her way. No box for her. A couple of weeks earlier, in a moment of connectedness, she shared with me her sadness over the impending consequence of another round of summer school, but then reframed the situation by naming her truth out loud. “Mom, I am so proud of myself. I never thought I would actually graduate this year. I assumed I would have dropped out of high school by now or that I’d end up being a Super Senior (fifth year senior). But the reality is I will graduate this year, just a little bit late.” 

Sitting as the center of attention at her last IEP (Individualized Education Program) meeting of her high school career, surrounded by her teachers, her case manager, the school psychologist and her parents, she listened as they pointed out all of the positives they see in her character—her creativity, her great personality, the ways she understands the material unlike other students, her educated and informed perspective shared freely in class, her high level of intelligence. Yet they also expressed that they were confounded by her grades, because she tests high, but her grades don’t reflect this because she doesn’t turn in much homework. In the midst of all of these adults encouraging her to change her ways so she can just graduate, once again she refused to be put into the box we all want to squeeze her into. Instead courageously she declared aloud “I will try my best, but the school system wasn’t made for people like me. It isn’t set up in a way that encourages people with brains like mine to succeed with ease. It’s made for people with brains that society deems “normal”. To be honest, society in general isn’t made for people like me.” NEVER would I have been so brave at 18. And thirty one years later, on the verge of 50, still I am not so sure I could be.

Our entire journey has kind of been like this—me trying to keep together a neat and clean and perfect life, struggling to stay in our lane and keeping up the status quo. Her life, as God so perfectly created her, challenges my efforts every step of the way. And THIS is exactly one of the reasons I have so much joy today. I wonder who would I be today without her beautiful life confronting the worst parts of myself? Who would I be if I didn’t have reason to find my voice to stand up for a child who wasn’t getting the support she needed to succeed in school? Who would I be if I hadn’t walked with her through the perils of an anxiety disorder and witness its ability to render her completely unable to function? Who would I be if I didn’t learn to be flexible when her overly sensitive sense of touch deemed it necessary to try on 10 different outfits before finding one she could tolerate for a day of school, making her late time and again? Who would I be if I didn’t learn to accept that the only way she could sit through an hour of church was to spend most of the time drawing intricate mehndi designs on her hands with a Sharpie? Who would I be if I didn’t aspire to unconditionally love the girl God created her to be–fearfully and wonderfully made–yet so different from me, so different from many? Insufferable, intolerant, unkind, judgmental–that is who I would mostly be if it weren’t for her.

Watching my child suffer all these years from the ever present effects of living in a square peg world as a person with inattentive type ADHD, an anxiety disorder and a sensory processing disorder has also changed me profoundly. It probably didn’t make it any easier for her that we live as a middle class family in a predominantly white and affluent suburban Chicago community and she attended a private elementary school focused on superb academic performance. And yet, somewhere deep in my heart, I do trust that God plants us where we are meant to be in order that we might grow into who we are created to be. Unfolding before me every year of her life are glimpses of the soul He created. These glimpses—they surprise me and catch me off guard; they are intertwined with the less inspiring angst and messiness of teenage development. Oh but when I take notice of them, they humble me and send me to my knees in thanks for what He is forming within her. They restore hope and remind me that I am not the one in control, but only a supportive companion on the way. The constant struggle to hold her head above the water has smoothed her hard edges and cracked open her big heart to the suffering of others. It has strengthened her character and made her a fierce advocate for the plight of the marginalized.

It seems that every year she has invited me deeper into an entirely different relationship with those living on the periphery of life—and I have to admit that I haven’t always been a willing participant. Without any hesitation, she invites into our little home the souls who others might consider misfits, but she calls them friends. The outcasts, the traumatized, the bullied, the mentally unhealthy, the cutters, the motherless, the homeless, the rejected, the abandoned. She has brought them all home to shelter them and allow them to be welcomed, loved, accepted, fed and more than a couple of times, she has given up her bed so they could sleep in it for the night. One by one, these children she has brought to my door have become priceless gifts of life to me. Most look a lot like her—uniquely beautiful, but easily cast aside for not fitting into the confines of polite society. One by one their souls have taught me so much more than I could ever teach them. One by one they have smoothed out my hard edges and cracked open my heart. They have strengthened my character and made me a fierce co-advocate for the plight of the marginalized alongside my daughter. They have halted my march in the lane of the status quo where I sought to find a sense of security and control. Together, she and her friends have propelled me into unknown terrain where I have encountered Christ more intimately than ever before.

Graduation Day found me beside her, up in the nosebleed section of the bleachers in her school gym. She asked me to go with her to watch her classmates walk, so that she could support them. I think it was way more difficult for her to be there than she had anticipated, but she stayed. One after one, students were called up to give speeches because they had achieved exemplary academic success. Their future plans and scholarships were announced. In his introductions, the principal speculated what incredible lives these students will most certainly lead. Through some tears, she continued to snap photos and cheer loudly for her fellow students. Without thought for herself, she showed up. Such a glimpse into this magnificence found in her young soul makes me way more proud of her than if she had passed that damn English class and walked across the stage to receive her diploma with the rest of the Class of 2019.

As I sit here at the kitchen table typing this post, I continue to grapple with this slow and painful process of dying. She is running a bit behind in her morning routine and summer school starts in 30 minutes. She is on week three of three with only four more days left. If she passes the class, she will receive her diploma in the mail come August. Waging war within me is the rising anxiety that she will be late today and the strict rules about attendance flash into my conscience and fuel my repeated reminders that I excitedly shout in the direction of her room. “Sadieremember only one excused absence is allowed for the entire session and tardies add up to an absence. Come on! Hurry up!!” God knows I just want her to be done with this leg of the journey. I want the finish line to be behind us.

At this exact moment, the One who created her, He who is all patient and has a great sense of humor, He crashes through to get my attention. My computer dings to alert me to a new email—it is one to which I subscribe daily. The subject title briefly flashes in the corner of my screen “Conscious Parenting—Giving Ourselves”. Seriously God!? I click the link and read:

Fred Rogers, the Presbyterian minister behind the TV show Mr. Rogers’ Neighborhood, said once that “to love someone is to strive to accept that person exactly the way he or she is, right here and now.”

That moment when we say, I accept you—even though being with you is awfully hard right now—that’s love. It doesn’t mean there aren’t consequences—we don’t have to accept terrible behavior. But part of how we love our children is in choosing, again and again, to take the whole child. . .

Maybe, as our hearts overflow, we find that love can, naturally of its own accord, extend wider, until it encompasses caring for all things, and connection to everything—until our love becomes Love itself…”

Fr. Richard Rohr, OFM

Today’s take away…surrender; let go; trust; love freely; allow Me to continue to stretch you into an incarnation of My love in this messy, chaotic world that is in need of being embraced as it is. For it is in dying that you will be born to eternal life.

Sadie, thank you for choosing me to come through unto life to be. You are a beautiful reflection of His grace. For I know that a gift so great is only one that God could create. And I’m reminded every time I see your face that the joy of my world is in you.

Photo credit: Sadie by Abby Hentz

When the Almighty, All Powerful & All Loving One Does Not Measure Up

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The first time I can remember when the One who is Almighty, All Powerful and All Loving did not measure up to my expectations was on Sunday, March 20, 1977. It was the morning of my First Communion and I had been spiritually prepared for months in advance to receive the Body of Christ miraculously present in the little piece of unleavened bread known as the host. The problem was, no one, other than my uninformed, imaginative 8 year old self, had prepared me physically for this experience.

Disclaimer: As I continue, it is not my intention to be offensive in any way and I myself believe wholeheartedly to this day in the Real Presence of Jesus present in the Eucharist, however I will be honest about my experience of Him as a child. IF you are easily offended by such honesty, you should probably stop reading here.

My method of self-preparation for First Communion consisted in this: when bored during Mass, I would find myself daydreaming and staring at the bas relief-esque sacred artwork on the wall to the right of the sanctuary and imagining the delicious taste of heaven I was going to receive on the day of my First Communion. It was a beautiful piece of art, portraying the parable of the vines and branches, with grapes a predominant theme in the portrayal. The deep theological significance of grapes and vines and branches was completely lost on me at that stage of spiritual development. My sole focus was on the taste of grapes. In the web I wove in my little girl mind,  I associated the flavor of grape not with the actual fruit which we would consume plentifully each summer, but with the grape flavor I loved most–the one concocted by some genius pharmacist who helped brew up grape flavored Dimetapp, circa the 1970s. Back in the day I didn’t mind getting cold symptoms, because to be stuffed up and coughing meant a few days worth of better-than-candy Dimetapp was going to be freely poured onto a big spoon several times a day and handed over for me to drink. YUM! I was convinced this was most definitely a sweet pre-tasting of the heavenly banquet and how could God taste anything less delicious than Dimetapp?

Well, as you might imagine, March 20th arrived and all did not go according to my plan.  When a heavily wheat flavored host was placed upon the outstretched tongue of this girl whose daily experience with bread involved only the kind named Wonder, things quickly took a turn for the worse. First off, Jesus got stuck to the roof of my mouth. This was a frequent experience of early communicants, at least until you got into the practice of receiving communion. This only served to intensify the unexpected and unpleasant flavor of the wheat filling my taste buds with horror. I tried to swallow what I could, but before I knew what was coming, my gag reflex kicked in and everything holy I had just consumed landed into the lap of my visibly shaken mother. I guess you could say, things between Jesus and I didn’t get off to a good start. I was wholly disappointed in the Almighty One. Why did He sell Himself so short when in my mind He should have been the best tasting food on earth!!?? Thankfully, in response my parents didn’t overreact and call in an exorcist for me. Instead, they made me practice receiving unconsecrated hosts for weeks before I was allowed to try again with the Real Jesus. I am happy to report that the Almighty One didn’t give up on me, even though He didn’t measure up to what I thought He should be like.

I was reminded of this story just the other day because my mom is cleaning out boxes of old stuff and she handed me a copy of the church bulletin she saved from 1977 with my name listed under the article entitled “First Communions”. My parents, who are now in their early eighties, find themselves in a difficult situation. They are moving. The good news is they’ve lived longer than they had planned and therefore they need more cash to continue those lives. The bad news is their cash is tied up in their property. Since their vacation rental in Galena hasn’t sold in the last four years it has been off and on the market, they have decided to sell their main home. It breaks my heart to see them have to upend their comfortable retirement and leave the place they love, filled with memories of their grandchildren growing from babies to adults, large, cozy family celebrations and memorable card games around the table where all of us gathered to be together, basking in the the warmth of my parents’ love and support, while simultaneously trash talking whoever dealt us a crappy hand.

I sense a wrestling within me again with the One who is Almighty, All Powerful & All Loving. This scenario most definitely does not measure up to my expectations of how He should provide for them. They are two of the most wonderful human beings I’ve ever met and they’ve given their lives in love and service of God and humanity. Why is He selling Himself short by allowing His servants to have to undergo such hardship and humility!!?? To add insult to injury, in the last two weeks, my dad who like the old Timex slogan, “takes a licking, but keeps on ticking” broke his elbow and about 7 days later had a mini-stroke. “Some people will do anything to get out of packing” I said to my dad in jest, but truth be told I find myself just plain old mad at the Almighty One because my mom is now burdened with more of the heavy lifting, both proverbially and in reality. Thankfully, in response He who is Almighty, All Powerful & All Loving doesn’t overreact and call in an exorcist for me. Instead, He invites me to practice the art of opening my eyes wide to find the good, the blessing, the lovely, the beautiful through this, in this and with this unfortunate scenario.

My parent’s oldest grandchild Keegan, and his wife Emma, are amazing humans. They have a way about them that is set apart. They are very passionate about that which they believe is important and their actions match their beliefs. One passion they have is giving back to those who have given to others. They have offered their comfortable ranch home to my parents to live in while Keegan is on active duty with the United States Marine Corps, thus removing a huge burden as to where to go now. Keegan will be taking time off of work to fly home in advance of the move to outfit the house with some added safety features so that Grandma and Papa are comfortable and safe. It occurs to me that maybe this scenario has been allowed so that the graciousness of their spirits and joy of giving back may shine forth through Keegan and Emma, and my mom and dad can receive full circle the extravagant and supportive love they have shown since the day Keegan was born. “Open your eyes to this goodness” the still, small voice whispers to me.

Mom and I met the most lovely of women when Darlene, the realtor, showed up at the door one day at the end of March. Not only did she affirm my mom’s great sense of design, but shared how relieved she was at discovering there was not much work to be done here to stage the house. Darlene grew up with Emma’s parents, and greeted my parents as family, since they are Emma’s grandparents-in-law. With warmth and sweetness, she left my parents with hope and support and a generosity they had not expected to encounter in the experience of listing their home on the market. Although my career path took a very wide turn somewhere during my twenties, in my early life and early days of college, I wanted to be an Interior Designer. In the midst of the sadness of change, I found it to be a fun, creative and bonding experience working with my mom to get the house picture-ready. Darlene was impressed by our efforts and less than 24 hours after the house was listed, it sold. It occurs to me that maybe this scenario has been allowed so that mom and I may be gifted with time together to build new, joyful memories in the midst of a letting go of old ones. “Open your eyes to this blessing” the still, small voice whispers to me.

In the past I have written more than once about my parent’s incredible love story, still going strong 57 years later. Every so often there is an opportunity to listen anew when they retell it to someone and I revel in hearing every last detail. Lo and behold, in preparing for moving day, my mom came upon a box of old letters my dad wrote to her when they had broken up, months before they ended up eloping and getting married. I was salivating at the chance to learn of these unknown details of their story and she let me read them. BE STILL MY BEATING HEART. When he thought all was lost and the plan was not going to go as he thought he wrote to her, “Of course I want you to change your mind about things and marry me because I know we would be happy together…if I can’t have you I can do the next best thing by remaining close to you so I can continue to tear myself up into little pieces.” And, I’ll never forget you Suzanne Kennedy. I’ll remember all the good times and forget the bad. And as long as both of us are single, I’ll always hope that you’ll end up as my roommate for life. For no matter which way our lives lead us there will always be a section of my heart labeled “Sue & Todd”. (Todd is my brother from my mom’s first marriage and was about 3 or 4 years old at the time) But wait, there’s more…”I sincerely hope that you can decide what you want and get off the merry-go-round of confusion. It may be that you will be up and down with everyone that comes along. (In which case you’d be better off with me) But I sincerely hope not. I’m still available…my standing proposal is always open. I wish I could give you the world; but more than this I wish I could give you peace of mind in everything you do and all decisions you make.” Signed: “Just a tired, bewildered, little fool who wishes he had your shoulder to lay his befuddled head on every once in awhile. Chuck.”

“DAD!” I found myself exclaiming aloud after reading these lines, “Boy were you smooth!!  You got the girl!! You won her over with your words and your heart!! You are good Dad!!” And suddenly he who finds himself saddened with broken body, unavailable to help his wife with the tasks of the move, he lights up like a Christmas tree and remembers that this life he has built with this incredible woman was good, is good and will continue to be good. It occurs to me that maybe this scenario has been allowed so that dad may be reminded of his wonderful life and be affirmed in the excellent choices he has made, even though in his current situation his body prevents him from being who he wants to be for Mom.  “Open your eyes to the lovely” the still, small voice whispers to me.

My thoughts are nothing like your thoughts,” says the LORD.

And my ways are far beyond anything you could imagine.

For just as the heavens are higher than the earth,

so my ways are higher than your ways

and my thoughts higher than your thoughts.”

ISAIAH 55:8-9

40+ years past my First Communion and our rough start together, I am happy to report that the Almighty One still hasn’t given up on me, even though He doesn’t always measure up to what I think He should be doing. And thankfully, He gently reminds me of my place in creation, while generously opening wide my eyes to see He surpasses my standard of measurement through the revelation of His presence most clearly in the good, the blessing, the lovely and the beautiful found in the scenarios I might even see as unfortunate.

Yesterday, on April 27th, in the midst of a beautiful week of Spring, a nasty snowstorm hit the Chicagoland area. “This is just wrong! This isn’t how it should be” was overheard all day in conversation, on the television, and on social media. Early in the morning today when I woke up and went out for my cup of coffee, I was awestruck by the beauty of the colors and contrast found in the rare palette of white snow, partially covering the bright green grass and colorful tulips set against the backdrop of a clear blue sky. It occurs to me that maybe this scenario has been allowed so that we all may realize that the most awe inspiring moments are sometimes born from the unwelcome, unwanted and unexpected intrusions into our lives. “Open your eyes to the beautiful” the still, small voice whispers to me and continues,“I am the Almighty, All Powerful & All Loving One. Trust me. I’ve got this!”

 Yet just as from the heavens

the rain and snow come down

And do not return there

till they have watered the earth,

making it fertile and fruitful,

Giving seed to the one who sows

and bread to the one who eats,

So shall my word be

that goes forth from my mouth;

It shall not return to me empty,

but shall do what pleases me,

achieving the end for which I sent it.

Yes, in joy you shall go forth, in peace you shall be brought home…”

ISAIAH 55:10-12b

The Beginning of Freedom is to Call Things by their Right Names

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Cill Rialaig, photograph by Bill Miles

When I was still too young to have learned words to express what was happening within my inner life, there were times I felt myself to be absolutely trapped in a sense of utter terror, seemingly without warning or understanding and without the ability to ask for help. It took until I was almost 20 years old to finally learn that there was a name for experiences like these: panic attacks. They were debilitating and confusing and scary. As a child, these experiences made me feel as if my whole world were off kilter and the ground might open up and swallow me whole. Most times there was no specific fear that triggered them. They would simply sneak up on me unexpectedly and felt scarier than any monster hiding under my bed because (a) I could not see them coming and (b) I could not escape them. I remember one of the things I would do to try to lessen the sense of impending doom was to draw near to my parents. I would search for them in the house and stay close. This was the only semi-remedy that I recall could sustain me until the terror passed.

In early adolescence, I slowly began to figure out a repeating pattern as to when I could most definitely expect panic to pay me an unsolicited visit. It seemed to always coincide with overnight visits or vacations. Being in a new environment where everything looked unfamiliar made me feel as if I had entered a sort of twilight zone. It was as if I was no longer on the same plane as everyone else, but rather in a space in between. Nothing felt normal, nothing looked right, I didn’t feel as if I was inhabiting my usual body and soul and again, I lacked the words to describe the experience to anyone around me. Panic would crash upon my shores like an unexpected tsunami. I can only imagine this made me an entirely unpleasant travel companion.

In high school, my frequent encounters with panic were joined by other unpleasant emotions, including depression. Between the frequent attacks of anxiety and the depression that would follow, it was getting increasingly hard to live life. Finally in a moment of desperation, I reached out and asked for help. My parents responded lovingly and within the week I was sitting in the office of a man who still, to this day, serves as my trusty psychologist when he is most needed. For years, not once did he give me a label as to what was this thing that imprisoned me. He listened and indirectly taught me how to better cope with my symptoms and slowly helped me to feel better and stronger. But there was this one day, when I decided to the look at the receipt he handed me after every session to pass on to my parents. On it I found a code for my diagnosis and I decided to look it up.

There is an old Chinese Proverb which reads, “The beginning of wisdom is to call things by their right names”, but in my case, I would like to apologize to the wise Chinese and put a wee little Irish spin on this proverb (simply because I’m most proudly of Irish descent) and rephrase it to read, “The beginning of freedom is to call things by their right names.”

309.28: Adjustment disorder with mixed anxiety and depressed mood. 

Finally; my disconcerting experience of life as I knew it had a name. 309.28: Adjustment disorder with mixed anxiety and depressed mood. Kinda like a title, a first name, a middle name and a last name. Having a name meant it could be known and maybe even understood. It meant it didn’t only exist in my head, but it was real. It meant it was so real that it was identified with a list of common symptoms in a Diagnostic and Statistical Manual for Practitioners of Mental Health.

In an article entitled,  The Power Of A Name: The Power Of Naming, Rabbi Andrew Davids brings clarity to this experience when he writes:

God gave human beings the ability and power to name. Just as God separates light from darkness and dry land from water, the biblical text affirms that humans–created in the image of God–may seek to bring order to our chaotic and dynamic world through the process of naming.”

Humans may seek to bring order to our chaotic world…through the process of naming. Though throughout my life, I’ve met many people who would rather not “be labeled” by their specific diagnosis, the day I learned the name of my nemesis is the day it lost a whole lot of power and my journey of freedom began.

In the years that followed, I made it my life’s mission to rid myself from my role as the unsuspecting victim of an unknown maleficenceIn the pre-internet days I devoured every possible book I could get my hands on that would help me to learn the ins and outs of adjustment disorder and anxiety. In the early days of the internet I read of others’ experiences which sounded just like mine. Misery does love company because it teaches us there are others as miserable as us. We are not alone. We are not without understanding. Most importantly, it teaches us we are not without hope. Knowledge didn’t completely stop waves of panic from lapping upon the shores of my life. However, I learned to see it for what it was. I figured out some good ways to anchor myself in the sand, so that even though its cold and crashing waves might leave me worn out and tattered, they would not be able to carry me off into the sea where I could drown.

It has been nearly 30 years since my nemesis was named. Though I wouldn’t say we are on a first name basis, 309.28 and I have learned to co-exist, and on most days ours is a peaceful co-existence. The paradox is I know I wouldn’t be who I am today if it weren’t for its presence in my life. I will even go so far as to admit it prepared me well to be able to better respond to my own child who began experiencing her own panic attacks at an early age. By the time she was 10 years old she already knew its name and was well on her way on the path of liberation.

Definition of freedom (from the Merriam-Webster Dictionary):

1the quality or state of being free: such as 

athe absence of necessity, coercion, or constraint in choice or action 

bliberation from restraint or from the power of another 

cthe quality or state of being released usually from something onerous”

When I consider the definition of freedom I must admit that although I am so much more liberated than I was before I learned the name of my nemesis, it still constrains me in two particular ways: (1) I have allowed it to hold be back from the desire to travel and experience new places, lands and cultures. (2) I have also allowed it to steal from me the experience of being comfortable being by myself, let alone traveling by myself, for fear that without loved ones near to save me, I might surely be swallowed into the earth or carried off into the sea–and that would be a terrible thing, especially while in a foreign country!

My admiration remains strong for my friends and family members who have collectively seen most of the world and are better and more interesting people for having done so. Some of them even ventured out on their own and they lived to tell about it! Traveling vicariously through their stories is as good as it gets for a girl who prefers to stay in one place for fear of re-entering the twilight zone. Yet I am happy to report that in recent years, a dream has been born in my heart to take back the reins and to face the greatest anxiety- provoking travel experiences of my childhood. The name of my dream is Cill Rialaig.

On the southwest coast of Ireland, the Cill Rialaig Project rescued and restored a small pre-famine village, thus creating an artists retreat that has attracted artists from all over the world. It is a retreat for professional visual artists, writers, poets and composers who apply for a residency to live for a short time at the Cill Rialaig Retreat and work on their craft. Ireland is calling to me and to Cill Rialiag I desire to go, by myself, to work for a week on writing. Remembering from my youthful experience that good things can begin to happen when we reach out and ask for help, I contacted my friend Carlos, an editor of a locally published magazine. Within a short period of time, he had published my writing and continues to do so in hopes that I might meet the requirements to apply for the residency. Even now he remains one of my fiercest co-freedom fighters.

Although freedom is most certainly a process, one that takes at least an entire lifetime to attain and for all I know, probably some of eternity too, what I am certain about is that mine began the day I was emboldened to call things by their right name. Thank you 309.28!

A Little Bit of Light Pushes Away a Lot of Darkness

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Every so often we are offered a deliberate opportunity to stop and reflect upon the power of one person who uses their light to make a big ol’ positive difference in our lives. Just this week that opportunity was mine when I was asked to write a letter of support for my daughter’s IEP Case Manager and math teacher, Derek Sutor, who has been nominated for Educator of the Year in our school district. Since this world can be short on tales of loveliness, I want to turn the spotlight on one such story about this man who has changed our lives forever. He has spent four years rooting for our girl, so now it’s our turn to root for him.

For every family who feels alone in their journey to love and support a neuro-atypical child, for every parent who feels the burden to educate those who misunderstand, for every shy, people-pleaser who is forced to be fierce, for every kid who doubts they will ever overcome their challenges, we wish the gift of an encounter with an educator like Derek Sutor. He is someone who exemplifies the truth that a little bit of light can push away a lot of darkness and forever change the trajectory of a child’s life.”

Dear Educator of the Year Selection Committee,

Recently it came to my attention that Derek Sutor has been nominated by his colleagues at Geneva High School for the 2019 Educator of the Year. Not only did this news bring me great joy, because I can think of no other educator more deserving than he, but I also was thrilled to be asked to write a letter in support of his nomination. We address you today from the perspective as a mom and dad to one Geneva High School senior whose life trajectory became brighter and better the first day of her freshman year when she stepped into Algebra IA. It was her first team taught class and half of that dynamic teaching duo was Derek Sutor. We will forever be grateful for that moment because it is when she met this incredible man whose belief and whose championing of her cause has, without a doubt, had the single most positive impact on her life as a high school student.

As a mom, my journey as a neuro-typical person raising a child diagnosed very early on with Sensory Processing Disorder, inattentive type ADHD and an Anxiety Disorder has perhaps been the greatest challenge of my life. In the throes of the worst of days, it feels like riding on a roller coaster buckled in next to your child, but the ride remains on constant repeat. It doesn’t stop and it doesn’t let you or your child get out of the car when you’ve both had enough. It can be thrilling and terrifying and dizzying and anxiety producing and sometimes even sickening. And so much of the time you feel alone—as if the responsibility to help your child survive and function on this crazy ride rests solely on you. Sadly on these days, you don’t even allow the hope of ever seeing your child thrive enter into your consciousness-you just want to get through the day or the next hour or maybe even just the next minute.

Being a neuro-typical person raising a neuro-atypical child means your primary vocation as parent suddenly involves investing lots of time and money to provide occupational therapy and psychotherapy and testing and psychiatric services. It means educating yourself so that you might understand how to best love and support and motivate a child who experiences the world differently than you. And then in turn it means having to respectfully share your education with those who are like you were at one time-ignorant of the struggles faced by a child like yours. Sometimes it causes you to have to be fierce, even though you may be shy and people-pleasing by nature. It stretches you beyond your boundaries of comfort, but you go there because you love this child more than life itself and would do anything to relieve the suffering they experience being square in a world built for circles.

It was a scary decision to move our daughter from the small, private school in DuPage County where she attended K-8 to the large environment of Geneva High School. Though her experiences in elementary school included many ups and downs, by 8th grade we had developed a mostly positive rapport with the faculty and they were granting her some accommodations after years of negotiation. Moving to the public school system with the task ahead of working to establish an IEP was a bit overwhelming and we knew no one. However, we believed that she would have quickly drowned in a private high school environment and knew GHS was the best option.

You can imagine it was much to our surprise when we received a letter after the first month of freshman year informing us the Math Department had chosen our daughter as Student of the Month. We were delighted. At the recognition ceremony before school one morning we gathered, met Mr. Sutor and his co-teacher Mr. Showalter for the first time, and listened as they recounted the great qualities and efforts they observed in our daughter. This was one of the moments in which we found ourselves overwhelmed with gratitude that someone other than us was able to see the heart of our child and find the good within and to name it for her to hear.

Freshman year was full of testing and evaluations in the effort to establish an IEP. At the forefront of our efforts we found consistent support from Derek Sutor who had quickly become our daughter’s favorite teacher. He had a way of building up her confidence while also challenging her when she wasn’t performing to the best of her ability. To this day she still refers to him as her “Coach in the Classroom”. At the end of the year when it was concluded she would benefit from an IEP, Derek didn’t hesitate to express interest in becoming her case manager. This came as a complete relief because with Derek championing her cause, it felt as if we were no longer alone. We felt assured she had an advocate at school who not only possessed a keen understanding of how our daughter functioned, but who also had developed an effective way of motivating her to rise up to her potential.

As we continued our relationship with Derek in consecutive years, it became abundantly clear that for him, educating students and advocating for them isn’t merely a job, but his life’s mission. He has gone the extra mile time after time to do all that can be done to help our daughter not only survive high school, but to even have times in which she thrives. Derek has proven over and over his ability to see instinctively what many of us may never notice. During some particularly rough patches, our daughter could be observed in class sticking in her ear buds, pulling her hood up and over her face and tuning out. Most of us might experience this type of behavior as disrespectful and unacceptable. Instead, what Derek seemed to observe was a kid who was waging a great battle inside to fight off an encroaching panic attack. Not only did he recognize the truth of the situation, but together with her input, they figured out alternative ways in which she could cope in these moments. Behind the scenes, he confidentially communicated these methods to her other teachers, so they could all work as a team to help her. Because of Derek’s efforts, our daughter’s community at GHS has become bigger and she has found many teachers who have been enabled to understand her better and advocate for her in ways they are able. The environment she now encounters each day is one that is supportive, understanding and encouraging.

One of the things we find most inspiring about Derek is his ability to use the challenges he has faced in his life to model for his students how to become a successful and positive influence in the world, even when they encounter others who don’t understand them and may even mock them. He is honest with the hardships he has endured and uses his life as a shining example of one who has overcome through his choices and his hard work. This is also exemplified in the way he lives his life outside the classroom, juggling his role as a baseball coach, his roles as husband and father and even training and finishing the Chicago Marathon last fall. He is an incredible witness to his students and shows them who they can become, even with the incredible challenges they face.

As I reflect back on nearly four years at GHS, I realize that somewhere along the way, the crazy roller coaster ride began to slow down and one day it was as if it came to a complete stop. Offering us a hand to step off the ride was one very influential advocate who joined us in our efforts to help our child survive and function and he built a community of others to assist us in fulfilling our goals. There is an old proverb that says, “A little bit of light pushes away a lot of darkness”. One thing we know for certain is Derek Sutor has been and continues to be a bright light in the life of our family. He has worked ceaselessly to create with our daughter many experiences of success and his belief in her has given her the freedom to dream of who she can become, despite her differences and obstacles. To us, her parents, he has given us the immeasurable gift to hope for a bright future for our girl.

For every family who feels alone in their journey to love and support a neuro-atypical child, for every parent who feels the burden to educate those who misunderstand, for every shy, people-pleaser who is forced to be fierce, for every kid who doubts they will ever overcome their challenges, we wish the gift of an encounter with an educator like Derek Sutor. He is someone who exemplifies the truth that a little bit of light can push away a lot of darkness and forever change the trajectory of a child’s life.

For these reasons and countless others, we wholeheartedly recommend Derek Sutor as 2019 Educator of the Year.

Gratefully,

Jim and Lisa Gilligan

Parents of Sadie, Class of 2019